Summary
Overview
Work History
Education
Skills
Languages
Key projects
Digital and Technical skills
Timeline
Generic
Walter Atzori

Walter Atzori

Fjaras,Halland County, Sweden

Summary

Patient advocacy and engagement leader with nearly 20 years in pharma and patient organizations, specializing in rare diseases. I bring deep expertise and a proven track record of forming strategic partnerships that integrate patient priorities with business objectives, fostering informed, patient-centered decisions. My external engagement philosophy centers on building sustainable, ethically sound partnerships with patient communities that create shared value, elevate lived experience, and support better outcomes. Highly experienced in leading effectively across matrixed, multicultural structures, equally effective as a people leader and as a high‑impact individual contributor. Extensive experience across hematology, nephrology, endocrinology, metabolics, neurology, and oncology.

Overview

18
18
years of professional experience

Work History

Sr. Dir. Global Patient Advocacy Strategic Lead

Alexion, AstraZeneca Rare Disease
Mölndal, Sweden
01.2024 - Current
  • Leading global patient advocacy strategy across therapeutic areas as a member of the Patient Experience Leadership Team while continuing to serve as Head of EUCAN & International Patient Advocacy.
  • Leading and executing high-profile patient engagement initiatives from early development through post-marketing, including Community Advisory Boards and various types of innovative community-partnered initiatives.

Key Achievements:

  • Built Alexion’s international patient advocacy capabilities entirely from the ground up, transforming what had been a fragmented set of activities into a strategic business function with clear standards, governance, and measurable impact.
  • Expanded high‑value alliances with patient organisations and external stakeholders, strengthening collaboration across the rare‑disease ecosystem.
  • Elevated company reputation and trust by establishing transparent, consistent community‑centred engagement practices.
  • Integrated meaningful patient insights at critical strategic milestones, enabling more informed, patient‑aligned business and portfolio decisions.
  • Built frameworks that enhanced organisational credibility and increased willingness from patient communities to partner on priority initiatives.

Sr. Director Patient Advocacy EUCAN/International

Alexion, AstraZeneca Rare Disease
Brussels, Belgium
06.2019 - 12.2023
  • Built and led in‑country patient advocacy team across all key EUCAN and International markets, managing a team of 20 Director/AD level professionals.
  • Shaped and executed the regional patient advocacy and engagement strategy, ensuring alignment between global priorities and local needs.
  • Successfully delivered impactful partnerships and engagement initiatives with rare disease communities across all in-line therapeutic areas, while also driving early engagement strategies for emerging portfolio indications.

Director Alliance Development EMEAC Region

Alexion
Brussels, Belgium
03.2017 - 05.2019
  • Shaped and cultivated sustainable, trust‑based relationships with rare disease and disease-specific patient associations across EMEA and co‑created opportunities for collaboration across the full R&D continuum
  • Drove proactive engagement with the rare disease community on key policy topics at European and country level
  • Championed meaningful patient involvement by convening multi‑stakeholder initiatives that elevate patient engagement standards and accelerate adoption across R&D
  • Embedded patient perspectives into business and scientific decisions by equipping internal teams to recognise, understand, and integrate the needs and priorities of patient communities.

Director, Head of Programs and Operations

European Patients Forum
Brussels, Belgium
10.2015 - 03.2017
  • Led EPF’s programmes and capacity‑building portfolio, managed a team of 10 and led policy work on HTA, eHealth, and meaningful patient involvement in therapeutic innovation.
  • Expanded and delivered major programmes, including EPF’s Capacity Building and the EUPATI Expert Patient Course
  • Built strategic, multi‑stakeholder partnerships across industry, NGOs, and professional groups, strengthening EPF’s role as a trusted patient voice.
  • Oversaw fundraising, budgeting, and operational planning, contributed to securing long‑term European Commission funding, and ensured strong financial and organisational performance.

Senior Program Officer

European Patients Forum
Brussels, Belgium
09.2011 - 09.2015
  • Drove EPF involvement several EU projects and strategic initiatives.

Program Officer

European Patients Forum
Brussels, Belgium
12.2009 - 09.2011

Project Officer

Conference of Peripheral Maritime Regions
Brussels, Belgium
02.2009 - 09.2009

Intern

CEDEFOP - European Agency
Thessaloniki, Greece
09.2008 - 02.2009

Education

Master in Business and Administration

Free University of Brussels
Brussels
2010

Master of Arts - European Studies

Siena, Panteion and Jagellonian Universities
Siena, Athens and Cracow
2007

Bachelor of Arts - Political Science and Sociology of Complex Systems

Universita degli Studi di Sassari
Sassari, Italy
2005

Skills

Patient and stakeholder engagement / Patient advocacy / Patient insights generation and integration / patient involvement in R&D / multi-stakeholder partnership / Leadership excellence / Team leadership / Adaptive problem solving / Capacity Building

Languages

English
Proficient
C2
Italian
Proficient
C2
French
Advanced
C1
Spanish
Intermediate
B1
Greek
Intermediate
B1

Key projects

  • Rethinking Miasthenia Gravis - 2025-2026 industry contributor
  • European Rare Bone Forum 2019-2024 Steering group industry member
  • IMI-PARADIGM Patients Active in Research and Dialogues for Improved Generation of Medicines 2017-2020. Contributed to project development and led Alexion´s involvement and contribution
  • IMI-EUPATI, European Patient Academy on Therapeutic Innovation 2012-2017, Responsible for coordinating the Expert Patient Course, 120 patient advocates trained
  • EPF Capacity Building program. Overall coordinator from 2014 to 2017. 75+ patient groups trained
  • Renwewing Health 2010-2013. Led multi-stakeholder advisory board on eHealth adoption
  • EUnetHTA Joint Action 2011-2016 - Stakeholder Forum representative
  • eHealth Governance Initiative 2011-2014. ExCo member and WP co-leader
  • Led engagements with different Community Advisory Boards (CABs): PNH, aHUS, NF1)

Digital and Technical skills

• Microsoft 365 (Teams, SharePoint, PowerPoint, Excel)
• CRMs and compliance platforms (e.g. Salesforce, Veeva Vault)
• Collaboration and workflow tools (e.g. Miro, Zoom)
• Generative AI for insight synthesis, communication, and content development (Microsoft Copilot, Gemini. etc.)
• Agentic AI tools for workflow automation

Timeline

Sr. Dir. Global Patient Advocacy Strategic Lead

Alexion, AstraZeneca Rare Disease
01.2024 - Current

Sr. Director Patient Advocacy EUCAN/International

Alexion, AstraZeneca Rare Disease
06.2019 - 12.2023

Director Alliance Development EMEAC Region

Alexion
03.2017 - 05.2019

Director, Head of Programs and Operations

European Patients Forum
10.2015 - 03.2017

Senior Program Officer

European Patients Forum
09.2011 - 09.2015

Program Officer

European Patients Forum
12.2009 - 09.2011

Project Officer

Conference of Peripheral Maritime Regions
02.2009 - 09.2009

Intern

CEDEFOP - European Agency
09.2008 - 02.2009

Master in Business and Administration

Free University of Brussels

Master of Arts - European Studies

Siena, Panteion and Jagellonian Universities

Bachelor of Arts - Political Science and Sociology of Complex Systems

Universita degli Studi di Sassari
Walter Atzori